By Yael Hashiloni-Dolev
This ebook offers the findings of a research into the social shaping of reproductive genetics in Germany and Israel. The research unearths dramatic ameliorations among German and Israeli societies in addressing the query of a existence (un)worthy of residing. a detailed research of the ways in which those societies deal with the stability among the standard and sanctity of existence illuminates controversies over reproductive genetics in an unique and provocative method.
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Extra resources for A Life (Un)Worthy of Living: Reproductive Genetics in Israel and Germany (International Library of Ethics, Law, and the New Medicine)
All this resulted in a situation in which at West German universities, until 1961, there were no genetic institutes in the Natural Sciences Faculties. Additionally, after the war, human genetics as a scientific discipline was scarcely represented in medical school curricula (Nippert, 1998). The effects of this lack of medical genetic education can still be felt today. Writing for a special supplement of the European Journal of Human Genetics, comparing medical genetics in 31 countries, Harris and Reid mention that in Germany, in the late 90s, access to genetic services was still limited by doctors’ lack of genetic knowledge (Harris and Reid, 1997).
Zlotogora, head of the department of community genetics in the Israeli health ministry is mentioned by his full name. The Israeli population of counselors is relatively small, and almost all its members know each other. In that sense, anonymity for people who discussed difficult ethical situations and personal values with me, is hard to provide, since by giving even the most general characteristics of the interviewee, s/he could easily be identified by peers. Therefore, when quoting from interviews I will sometimes use false identifications, or very general ones.
Thirty-one of the 44 contacted counselors (70%) responded. 2 Only a few – those whose email address appeared on the list – were contacted a few weeks later by email and reminded to fill in the questionnaire (phone calls were not made due to budget limitations). Four addressees returned empty questionnaires, 2 According to Christina Scholz, head of the BV main office in Munich, there are no programmatic differences between the two societies of geneticists: the German Society of Human Genetics (Deutsche Gesellschaft für Humangenetik), also known as the Scientific Organization of Geneticists, and the Professional Board of Geneticists (Berufsverband Medizinische Genetik), which is a professional organization.
A Life (Un)Worthy of Living: Reproductive Genetics in Israel and Germany (International Library of Ethics, Law, and the New Medicine) by Yael Hashiloni-Dolev